Coordinating and
developing nursing
knowledge for
children with cancer

NOBOS is a society for Pediatric Oncology Nurses
in the Nordic countries that coordinates and
develops knowledge in clinical nursing care.


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Read about the activities at the congress here - speakers, sessions, social activities.

Look at a map of the university building listing most of the rooms.

Saturday May 19

12.00 – 16.00

Registration / Information open

Uppsala University main building

19.00 – 23.00


Uppsala Konsert & kongress (UKK)

Sunday May 20

08.00 – 17.00

Registration / Information open


08.00 – 17.00

Poster viewing


09.00 – 09.50

Official opening with entertainment

Choir: Tonprakt. Conductor: Anders ’Grosse’ Grotherus. Song: Thomaz Szendrö. Piano: Leif Österlund



How to deal with difficult ethical problems in clinical practice

Session chair: Britt-Marie Frost


09.50– 10.00

Introduction to Ethics

Anders Castor, Lund, Sweden


10.00 – 10.40

Can clinical ethics committees be useful for clinicians?

Reidun Förde, Oslo, Norway


10.40 – 11.10

Coffee break


11.10 – 11.40

Moral deliberation in the ward

NOPHO & NOBOS Working Group on Ethics


11.40 – 12.10

Where is the child? - Navigating the intersection between pain and hopes of cure

Mats G Hansson, Uppsala, Sweden


12.10 – 12.20

When there is no chance of cure – where does palliation start and treatment end?

Li Jalmsell, Uppsala, Sweden


12.20 – 12.30

Is there a decrease in survival rates after reduction of therapy? A population based study of children with Hodgkin lymphoma

Charlotte Hopstadius, Uppsala, Sweden


12.30 – 14.00


Norrlands Nation


Session chairs: Sigrún Þóroddsdóttir and Ann-Christin Björklund


14.00 – 14.40

Welcome speech and news from the NOBOS board

Room X

14.40 – 15.00

The first hospice for children and youth in Sweden

Ann Edner, Nacka, Sweden


15.00 – 15.20

Difficult ethical situations in pediatric cancer care. A grounded theory (GT) study of ethical team disucssions

Cecilia Bartholdson, Stockholm, Sweden


15.30 – 16.00

Coffee break


16.00 – 16.20

Guided Self-help as Intervention for Traumatic Stress in Parents of Children with cancer

Martin Cernvall, Uppsala, Sweden


16.20 – 16.40

Multidisciplinary team for children with carniopharyngiomas

Anette Sjölund, Gothenburg, Sweden


Monday May 21

08.00 – 17.00

Registration / Information open


08.00 – 17.00

Poster viewing


Session chairs: Anne Thorvildsen and Ingrid Colberger Rudbäck


08.30 – 08.40

Information from the organizers

Room X

08.40 – 09.30

Cancer during adolescence – coping and psychosocial function in a longitudinal perspective

Gunn Engvall. Photo Catharina Olsson

Gunn Engvall, Uppsala, Sweden


09.30 – 09.50

Transitioning to everyday life. Adolescent leukemia patients' lived experience. Implications for nursing care in an outpatient clinic

Dorte Brinkmann Kristensen, Aalborg, Denmark


09.50 – 10.10

What about teenagers and young adults?

Maria Olsson, Gothenburg, Sweden


10.10 – 10.30

Young adult cancer survivors' experience of psychosocial rehabilitation

Jens Nygren, Halmstad, Sweden


10.30 – 11.00

Coffee break


10.45 – 13.30

Nobos board meeting

Seminar room 2

11.00 – 12.00

Round table discussion (read more!)


Late effects

Moderator: Charlotte Castor

Sal XI



Moderator: Carina Fondin

Room 3



Moderator: Gunn Engvall

Sal IV



Moderator: Ann Edner

Sal X



Moderator: Margareta af Sandeberg

Sal II

12.00 – 13.30


Norrlands Nation


Session chairs: Helle Borg Christensen and Jóhanna Lilja Hjörleifsdóttir


13.30 – 14.20

Hospital-based home care for children with cancer

Helena Hansson, Copenhagen, Denmark

Room X

14.20 – 14.40

Children's health when diagnosed with cancer. Their own and their parent's experiences

Laura Darcy, Borås, Sweden

14.40 – 14.50

Short pause

14.50 – 15.10

The impact of communication prior to and after the loss of a brother or sister to cancer - A nationwide long-term follow-up

Alexandra Eilegård, Stockholm, Sweden

15.10 – 15.30

Bedside handover. Parents' and children's perception of change-of-shift report at the bedside

Liselott Pettersson & Katarina Wallin, Uppsala, Sweden

15.30 – 16.00

Coffee break

16.00 – 16.20

Swedish nurses' descriptions of being an expert nurse in paediatric oncology care

Karin Enskär, Jönköping, Sweden

16.20 – 16.40

Short pause

16.40 – 17.30

The Swedish Childhood Cancer Foundation. Tribute to the pioneers

Joint session, NOBOS/NOPHO

From NOBOS: Gitte Petersen and Margareta af Sandeberg

From NOPHO: Gunilla Berglund, Stanislaw Garwicz, Göran Gustafsson, Gudmundur Jónmundsson, Anders Kreuger, Sverre Lie, Toivo Salmi, and Lars Åhström

Rickard Johansson, Founder of Swedish Childhood Cancer Foundation

From The Swedish Childhood Cancer Foundation Olle Björk

Song: Kristin Nordström, Interviewer: Jenny Strömstedt


Tuesday May 22

08.00 – 14.00

Registration / Information open


08.00 – 12.00

Poster viewing


Session chairs: Angelica Höök and Mette Normann Hansen


08.30 – 08.40

Information from the organizers

Room X

08.40 – 09.00

A mothers perspektiv on proton therapy

Anna Silfver, Fagersta, Sweden


09.00 – 09.20

Internet based coaching for children after brain tumor treatment

Anette Sjölund, Gothenburg, Sweden


09.20 – 10.10

Childhood cancer, school and infections

Margareta af Sandeberg, Stockholm, Sweden


10.10 – 10.40

Coffee break


10.40 – 11.00

Education day for relatives of children with cancer

Charlotte Castor, Lund, Sweden


11.00 – 11.20

Participatory innovation process for development of a digital peer support service for children with cancer

Eva-Lena Einberg, Halmstad, Sweden


11.20 – 11.40

Parental trust in healthcare—a prospective study from the Children's Cancer Hospital in Egypt

Hanan El Malla, Gothenburg, Sweden


11.40 – 12.00

Presentation from the host for Nobos 10th congress in Bergen, Norway

Sunniva Helland, Bergen, Norway


12.00 – 12.20

Evaluation form

Room X

12.20 – 12.40

Closing time

Gitte Petersen, NOBOS Board


12.40 –

Lunch on the run



"Cancer during adolescence – coping and
psychosocial function in a
longitudinal perspective
Created on: Friday, 20 January 2012 09:15.  Last modified on Saturday, 19 May 2012 16:27.  Read 11434 times 
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